@theaftd - IGDataHub

theaftd

Threads

@theaftd

15.7K

Followers

1,288

Following

3,002

Posts

N/A

Reels

Highlights

10/2

Photos/Videos in last 12

Bio

AFTD offers support, education, and research updates about frontotemporal degeneration (FTD) for families, caregivers, and healthcare professionals.

Links

sprout.link/theaftd

Avg likes

Avg comments

Engagement

0.1/wk

Posting

Likes and comments are still being collected for this account. Check back shortly.

#brainawarenessweek2025

Recent posts

FTD is a devastating disease that impacts thousands of families—but too few people know about it. 🧠 It’s the most common dementia for people under 60. ⏳ The average time to diagnosis is 3.6 years. 💰 The annual cost of FTD care is double that of Alzheimer’s. FTD has no cure, no FDA-approved treatment, and takes an immense toll on families. Raising awareness is the first step toward change. 👉 Click the link in our bio to learn more about FTD. 09 Feb 2025

Frontotemporal degeneration (FTD) is the most common dementia for people under 60, yet it’s frequently misdiagnosed. It can affect personality, behavior, language, and movement—impacting families, work, and finances in ways that set it apart from Alzheimer’s. Understanding the signs is the first step toward a correct diagnosis. Swipe through to learn about the five main types of FTD. 🔗 Click the link in our bio to learn more about FTD. #BrainAwarenessWeek2025 10 Mar 2025

Bruce Willis has been diagnosed with FTD, the actor’s family said in a statement released today. In March 2022, Willis announced his retirement from acting due to a diagnosis of aphasia. However, the family has shared, his symptoms have progressed and are no longer limited to challenges with communication, leading to his FTD diagnosis. “Bruce always believed in using his voice in the world to help others, and to raise awareness about important issues both publicly and privately,” the family said. “We know in our hearts that – if he could today – he would want to respond by bringing global attention and a connectedness with those who are also dealing with this debilitating disease and how it impacts so many individuals and their families.” Click the link in our bio to read more. 16 Feb 2023

🧠 FTD MYTH OR FACT? There isn’t one single test that can diagnose FTD. Diagnosis may involve neurological and neuropsychological evaluations, brain imaging, genetic testing, and other tests to rule out other conditions. 🔗 Visit the link in our bio to learn more about FTD and the diagnostic process. 01 Jan 1970

Natasha has been part of the AFTD community for several years, sharing her perspective and advocating for people affected by FTD. Now, hear directly from Natasha about her experience and what she wants others to understand about living with FTD. Follow along as we continue sharing her story through the end of the year. Support AFTD’s mission today ❤️ Link in bio. 12 Nov 2026

Can't make it to an in-person Walk for FTD? You can still be part of the movement! ❤️ Join us as a virtual walker and take steps for the FTD community wherever you are—your neighborhood, your favorite park, or even a treadmill. Every walk has a story. Every step helps support AFTD's mission. 🚶 Sign up for Walk for FTD at the link in bio. 11 Nov 2026

Understanding FTD subtypes 🧠 Frontotemporal degeneration (FTD) is a group of brain disorders caused by degeneration of the brain’s frontal and/or temporal lobes. FTD includes several subtypes that can affect behavior, communication, and movement. Watch to learn about the different FTD subtypes, then visit the link in our bio for more information. 10 Nov 2026

This past fiscal year, we continued making strides toward a brighter future for the FTD community – advancing AFTD's mission, bringing people and families together, and working to improve the lives of everyone affected by frontotemporal degeneration. Our 2026 Impact Report celebrates the progress we've made together and the people who make this work possible. 🔴 Explore our 2026 Impact Report and see how we're inspiring progress and transforming tomorrow! Link in bio. 01 Jan 1970

Caring for a loved one living with FTD can bring unique challenges. ❤️ This National Family Caregivers Month, we’re sharing a few reminders for FTD care partners: you are not alone, give yourself grace, and remember that taking care of yourself is important, too. AFTD offers resources and guidance to help care partners navigate the FTD journey. Link in bio to explore tips and resources for managing FTD. 08 Nov 2026

📚 Join us at the Austin Walk for FTD for a special appearance by bestselling author Robert Kolker and a chance to connect with Barb Frommell, Chair and Co-Founder of Cure MAPT FTD. Robert’s The Vanishing Family tells Barb’s family’s story of genetic FTD and the advocacy it inspired. 📍 Gilleland Creek Park | Austin, TX 📅 November 14, 2026 Walk with the FTD community and support AFTD’s mission! 👉 Link in bio to sign up. 14 Nov 2026

What a weekend in New York City! 🏃 Thank you to everyone who ran, fundraised, cheered, and supported the AFTD-Team at the 2026 TCS New York City Marathon! Together, you raised an incredible $85,991 to support AFTD’s mission. We’re grateful to everyone who made this race possible and helped raise awareness of frontotemporal degeneration. Every mile and every contribution brings us closer to a future free of FTD. Thank you for being part of the AFTD-Team! ❤️ 05 Nov 2026

📢 Join us next week, Wednesday, Nov. 11, at 1 PM ET, for AFTD’s CME webinar, “PSP and CBS: Recognizing Behavioral, Language, and Movement Symptoms,” featuring Carmela Tartaglia, MD, FRCPC. Learn to recognize key symptoms of progressive supranuclear palsy (PSP) and corticobasal syndrome (CBS), differentiate these conditions from other neurodegenerative disorders, and explore strategies for timely diagnosis, referral, and patient-centered care. 🔗 Link in bio to register now. 01 Jan 1970

Follower tracking

We have started recording @theaftd, but only 1 observation so far — not enough to show a trend yet. Track it daily →

Download @theaftd's data

Everything below is derived from this account, priced on the counts shown. Delivered as CSV by emailed link.

Data

Records

What you get

Price

Every post & reel

3,002 posts & reels

Caption, likes, comments, views, duration, mentions, co-authors and sponsored status for every post and reel.

See a sample

shortcode	caption	likes	comments
DF3CrkOu6Ye	FTD is a devastating disease that impacts thousa…
DHBtRx9yFeu	Frontotemporal degeneration (FTD) is the most co…
CovEwTMsOtt	Bruce Willis has been diagnosed with FTD, the ac…

Real rows from this account. The file continues in the same shape.

$30.02

Everyone who follows them

up to 15,739 followers

Handle, full name, ID, and verified/private flags for each follower.

See the columns

username	full_name	user_id	is_verified	is_private	profile_pic_url

These are the columns. We can't show live rows: Instagram serves no follower or following list to a logged-out client, so we hold none until you order.

$78.70

Everyone they follow

up to 1,288 accounts

Every account this one follows, same fields.

See the columns

username	full_name	user_id	is_verified	is_private	profile_pic_url

These are the columns. We can't show live rows: Instagram serves no follower or following list to a logged-out client, so we hold none until you order.

$9.99

minimum

Every post & reel

3,002 posts & reels

$30.02

Caption, likes, comments, views, duration, mentions, co-authors and sponsored status for every post and reel.

See a sample

shortcode	caption	likes	comments
DF3CrkOu6Ye	FTD is a devastating disease that impacts thousa…
DHBtRx9yFeu	Frontotemporal degeneration (FTD) is the most co…
CovEwTMsOtt	Bruce Willis has been diagnosed with FTD, the ac…

Real rows from this account. The file continues in the same shape.

Everyone who follows them

up to 15,739 followers

$78.70

Handle, full name, ID, and verified/private flags for each follower.

See the columns

username	full_name	user_id	is_verified	is_private	profile_pic_url

These are the columns. We can't show live rows: Instagram serves no follower or following list to a logged-out client, so we hold none until you order.

Everyone they follow

up to 1,288 accounts

$9.99

minimum

Every account this one follows, same fields.

See the columns

username	full_name	user_id	is_verified	is_private	profile_pic_url

These are the columns. We can't show live rows: Instagram serves no follower or following list to a logged-out client, so we hold none until you order.

You only pay for rows we deliver. Counts are the maximum available today; if an export comes back smaller, the difference is refunded automatically. Counts as last collected 6 hours, 53 minutes ago.

Tracking

A monthly plan, not a download: we keep reading @theaftd and email you what changed.

Track @theaftd every day · up to 5 accounts

We read @theaftd daily from today and email you the week's follower, following and post changes, with every reading so far as a CSV. Add up to 4 more accounts on the same plan. Cancel any time.

See the columns