@endofound - IGDataHub

Endometriosis Foundation of America

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@endofound

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Bio

Nation's leading nonprofit for endometriosis. Trusted news, education, advocacy & resources for women's health. Founded in 2006.

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app.endofound.org/patientday give.endofound.org/campaign/805677/donate www.endofound.org/member_files/docs/Advocacy-Toolkit-2026.pdf open.spotify.com/show/3vO9pDda39riIVwBLa2mhM?si=98eHqkMjSTCd_eZ9UiSk-Q linkin.bio/ig-endofound We found Email for this account. Get the details

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#endometriosis #endometriosisawareness #endo #endowarrior #womenshealth #teamendostrong #tcsnycmarathon #nycmarathon #endoawareness #endometriosisawarenesss

Recent posts

For everyone who’s been told ‘it’s just bad periods,’ #endometriosis has been found far beyond the reproductive system. Your pain is real, and this disease is bigger than most people realize. #endometriosisawareness 13 Sep 2026

The people who understand endometriosis best are the ones who have lived it. Real change begins when personal stories become collective action. When patients, families, and advocates turn their experiences into a force for progress. But knowing where to start isn’t always easy. That’s why we created The Endometriosis Advocacy Toolkit for Legislative Change, a guide to help you understand the process, find your voice, and take meaningful steps toward advancing the future of #endometriosis care. Whether you’re contacting your representatives, sharing your story, or learning how policy impacts the endometriosis community, every action matters. Your voice is a meaningful part of this movement. Thank you for your willingness to be a part if it 💛 🔗Download the full toolkit through the link in bio🔗 #endometriosisawarenesss #endoadvocacy #womenshealthmatters 22 Jun 2026

A huge day for endometriosis research! We’re thrilled to announce the launch of the Seckin Endometriosis Research Center for Women’s Health at Cold Spring Harbor Laboratory @cshlnews — the first facility of its kind, dedicated exclusively to decoding the mysteries of #endometriosis. Alexis Roderick Joel was there to help launch this historic center, and we are deeply grateful for her voice and support on this incredible new step for #endo research. Founded by world-renowned surgeon Dr. Tamer Seckin @seckinmd, this groundbreaking center will unite top scientists and clinicians to drive real progress in diagnosis, treatment, and hope for the 200M+ people worldwide living with endometriosis. With a $20M investment fueling 10 years of cutting-edge science, the future of endometriosis care begins here — and it begins with all of us. 🎗️Tap the link in our bio to learn more🎗️ Power the Science - Fuel the Hope! Photo 📸: @levradin 01 May 2025

“It’s just a bad period.” “Have you tried another birth control?” “Maybe it’s anxiety.” If you have endo, you’ve probably heard at least one of these. Maybe all of them. Medical gaslighting is one of the hardest parts of this disease, and it’s a big reason diagnosis takes so long. You know your body and you deserve to be believed. What’s the most dismissive thing a doctor has ever said to you? #endometriosis #endowarrior #medicalgaslighting #endometriosisawareness #chronicillness 12 Nov 2026

Your story and the latest research, in one room. That’s where change begins. 💛 Mark your calendars: EndoFound’s 18th Annual Patient Day returns March 6–7, 2027 in New York City and via livestream. This year’s theme, Endometriosis Across the Body: From Science to Lived Experience, brings patients, advocates, physicians, and scientists together. Saturday is hands-on, with interactive workshops. Sunday is a full day of talks. Both days are built around you. A place to learn. A community to belong. Make it a full weekend: our Medical Conference runs alongside Patient Day on Saturday, and the Blossom Ball closes things out on March 8. Early registration saves you up to $60, but only through January 15. Can’t make it to NYC? Join us virtually. 🔗 Link in bio to learn more and register. #endometriosis #endometriosisawareness #endosupport #womenshealth #endo 09 Nov 2026

“When you’re in so much pain every single day and have to fight to be heard, it’s exhausting.” Grace (@grace_macfie) was 11 when her symptoms began. Over the next few years, she was told she was just unlucky, that her pain was anxiety, and that it was “definitely not endometriosis.” At 14, excision surgery proved otherwise. Now 15, Grace is sharing her story from York, England, to reach girls her age who feel alone and the doctors who dismiss them. Tap the link in bio to read Grace’s full story. #endometriosis #endometriosisawareness #endowarrior #endostory #believewomen 07 Nov 2026

Team EndoStrong, congratulations!! Training for a marathon asks everything of your body: months of early mornings, long runs, and recovery. So many of our runners did it while living with endometriosis, and then they ran 26.2 miles through New York City. We are in awe of every one of you. Your record-breaking year raised $401,200 for the endometriosis community. A special congratulations to @hillconch, our top fundraiser, whose $30,000 sponsored a patient’s surgery, and to @adventureswithsarah, one of just 26 runners selected for @NYRR’s Team Inspire. Thank you to @baklinerunning, our Premier Sponsor, and to @bioligent for standing behind this team. #teamEndoStrong, you inspire all of us. Thank you 💛 #tcsnycmarathon #nycmarathon #endometriosisawareness 03 Nov 2026

Where did endo show up for you first? If your pain doesn’t have an answer yet, keep asking. #endometriosisawareness 02 Nov 2026

26.2 miles. 5 boroughs. One mission 💛 Hillary Conciatori (@hillconch) crossed the finish line at the @nycmarathon, and she brought all of us along for every mile. Hillary raised $30,000 for endometriosis research, advocacy, and awareness. She was one of 70 #teamEndoStrong runners who together have raised nearly $400,000 for the millions living with this disease. Hillary, thank you for carrying our community across that finish line. To every Team EndoStrong runner: you ran for every person who’s been dismissed, misdiagnosed, or told to just push through the pain. We are so proud of you!! #nycmarathon #endometriosis #tcsnycmarathon #nycmarathonrunners 01 Nov 2026

Congratulations to our incredible @EndoFound marathon team! With every step, you’re raising awareness for the millions living with endometriosis, many still waiting for a diagnosis. You’re running for them, and you’re making all of us proud. Bravo! #endometriosis #nycmarathon 01 Nov 2026

Our biggest shipment straight to schools yet! This week, volunteers joined us at the EndoFound office to pack 5,400+ ENPOWR materials headed to 10 states. Most are going to school nurses and health teachers who requested them for their students. The rest are the final College Ambassador boxes and packages for Endo Educators with events coming up. Every box means more young people learning the signs of endometriosis, and knowing that pain is never something they should have to push through. Thank you to everyone who showed up to pack, tape, and label. Want to bring ENPOWR to your school or community? Get involved at the link in bio. #endometriosis #endoawareness #endoeducation #schoolnurses #healtheducation 28 Oct 2026

As Breast Cancer Awareness Month wraps up, we're looking at how it got here. The pink ribbon didn't show up overnight. Before it, breast cancer was something people whispered about. Decades of organized, unrelenting advocacy turned that silence into a global movement. Endo is still in the whisper stage for too many people. It doesn't have to stay there. We asked Dr. Marisa Weiss (@drmarisaweiss) of @breastcancerorg what the endo community can take from that playbook. Her answers are worth your time. Swipe through, then tap the link in bio to read the full piece. #endometriosis #endoawareness #breastcancerawarenessmonth #womenshealth #patientadvocacy 26 Oct 2026

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shortcode	caption	likes	comments
DdPL0rehJmm	For everyone who’s been told ‘it’s just bad peri…
DZ5nVCQk58r	The people who understand endometriosis best are…
DJIJHn1PMQ0	A huge day for endometriosis research! We’re th…

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username	full_name	user_id	is_verified	is_private	profile_pic_url

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username	full_name	user_id	is_verified	is_private	profile_pic_url

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Every post & reel

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Caption, likes, comments, views, duration, mentions, co-authors and sponsored status for every post and reel.

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shortcode	caption	likes	comments
DdPL0rehJmm	For everyone who’s been told ‘it’s just bad peri…
DZ5nVCQk58r	The people who understand endometriosis best are…
DJIJHn1PMQ0	A huge day for endometriosis research! We’re th…

Real rows from this account. The file continues in the same shape.

Everyone who follows them

up to 50,000 followers of 124,874 total

$250.00

Handle, full name, ID, and verified/private flags for each follower.

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username	full_name	user_id	is_verified	is_private	profile_pic_url

These are the columns. We can't show live rows: Instagram serves no follower or following list to a logged-out client, so we hold none until you order.

Everyone they follow

up to 1,564 accounts

$9.99

minimum

Every account this one follows, same fields.

See the columns

username	full_name	user_id	is_verified	is_private	profile_pic_url

These are the columns. We can't show live rows: Instagram serves no follower or following list to a logged-out client, so we hold none until you order.

You only pay for rows we deliver. Counts are the maximum available today; if an export comes back smaller, the difference is refunded automatically. Counts as last collected 1 day, 11 hours ago.

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