The Brett Boyer Foundation

The Brett Boyer Foundation

@brightforbrett

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Let’s brighten the 🌎 as we raise awareness for CHD, fund CHD research, and spread the love of Down syndrome. 🐝SBB 7/8/16-2/21/17🐝 MY CHD SIDEKICK

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Nolan was born with a genetic condition called Methylmalonic Acidemia (MMA), which affects the way his body breaks down protein. When he was born, we were feeding him, not realizing that we were basically poisoning his bloodstream because his body couldn’t properly break down what he was receiving. His ammonia levels got up to over 600. He ended up spending about four and a half months in the NICU. During that time, doctors realized that his MMA was so severe that he would need a liver transplant. But about a month into his NICU stay, he also went into heart failure. We were home for a very short amount of time, and most of that time was spent going to doctor appointments and getting labs done. During that process, we were also told that Nolan would need a heart transplant. At the time, Vanderbilt couldn’t perform the combined transplant he needed, so his doctors contacted other children’s hospitals across the United States. Unfortunately, every hospital they reached out to denied him because both transplants would have to be performed together. His case was extremely complicated, and we were told that no one had ever performed a transplant like the one he needed. We were basically at the point where Nolan was going to be sent home on hospice care. But then, October of 2025, I was contacted by his doctor at Vanderbilt. They told me they were considering performing their first combined heart and liver transplant at the children’s hospital and wanted to take another look at Nolan’s case. 📍1📍 📸 @suhadabitphotography 12 Nov 2026 For some families, tomorrow looks different. ❤️ Meet Nolen. At the time of this photo, Nolen was waiting for a lifesaving heart transplant. Since this photo was taken, he has received his donor heart and is now recovering. While this is an incredible milestone, his journey is far from over. Nolen and his family will need to remain close to his transplant center for some time before they can finally return to their hometown. For families navigating congenital heart disease (CHD), life can change overnight. Hospital rooms become a second home, routines are replaced by medical updates, and the rest of the world continues moving while theirs feels like it has come to a standstill. Beyond the medical challenges, there is another side of CHD that often goes unseen. The emotional, financial, and personal sacrifices families make while caring for their children. We want to open the conversation and hear from the families who know this reality firsthand. Heart families, what was the hardest part about living in the hospital or being away from home during your child’s journey? Whether it was missing family milestones, being separated from siblings, the financial strain, or simply the uncertainty of each day, we invite you to share your experience in the comments. Your perspective can help others better understand what living with CHD really looks like, how we can better support heart families, and why that support matters. ❤️ 09 Nov 2026 One of the best things about this job is getting to meet so many amazing children and their families over the years, and having the chance to form friendships and bonds with them.” My path into cardiology started with my love of working with children. When I was a teenager, I spent time lifeguarding and teaching swim lessons, and I always enjoyed being around kids and helping them. While in college, I became involved in Anatomy and Physiology, where I worked as a lab teaching assistant for two years. That experience helped guide me toward the medical field. My drive into cardiology also came from a very personal experience. During halftime of a high school basketball game, my best friend suffered a cardiac arrest and passed away in front of us. He had hypertrophic cardiomyopathy that was unknown at the time. That experience has stayed with me throughout my career and continues to fuel my passion for cardiology, especially pediatric and sports cardiology. It is one of the reasons I believe so strongly in taking care of athletes and understanding the importance of heart health. I’ve been performing echocardiograms for 33 years, including 28 years at Johns Hopkins specializing in pediatric cardiology. Echo is such an important tool because an ECG allows us to see the electrical activity of the heart, and a stethoscope allows us to hear the sounds of the heart. But with an echocardiogram, we can actually see the heart and the many details of what is happening inside. Every patient has changed me. These kids are so resilient, so tough, and so strong. There are many days after work that I just want to go home and hug my boys. 📍1📍 06 Nov 2026 There are no words big enough to express the gratitude Bo, Caroline, Luke, and I feel after Saturday night. You showed up for Brett and for every heart family who needs it. Because of your generosity, we get to go into research grant season and the holiday season equipped to fund research and support families during what we know is the hardest time of the year to be in the hospital. Thank you for being part of the solution for the 1 in 100! 💛🐝 -Ellen 29 Oct 2026 The heart of this year’s Red Bird Games was our Warrior Walk. 💛 As @mattrogersusa introduced our heart warriors, each one had their moment to shine as they made their way down the yellow carpet. It was a special moment that reminded us why we do what we do. Our sweet Brett is the reason The Brett Boyer Foundation began, and her legacy lives on through every child and family we serve. The heart warriors you see in this video, along with children living with congenital heart defects across the country, are why we continue our mission of funding life-changing CHD research, raising awareness, and supporting families on their journeys. To every family who joined us, thank you for sharing your incredible warriors and their stories. You made this weekend so special, and we are beyond grateful to have you as part of our BBF family. The games may be over, but our mission continues. There is still so much work to be done, and together, we can keep making a difference for children and families living with CHD. 💛 🎥 @Bigmex7 @Elliotmartinmedia @Shotbyry_ 28 Oct 2026 That’s a wrap on Red Bird Games 2026! 💛🐝 Thank you to our sponsors and in-kind sponsors, and special guests, who donated their time, talent and products to help us raise precious funding for CHD research. 💪 ⭐️ @lukecombs @nicolejcombs @laurenalaina @lukebryan @linabryan3 @laineywilson @theclaytravis @timtebow @demitebo @kevinvandamfishing @bill_dance @chrisjohnstonfishing @coryjohnston_fishing @chasebriscoe_ @mattrogersusa @chaserice @georgebirge @chaycebeckhammusic 📋@erin_creighton_ 🎧@PrimaDante 👢@lucchese 🚗 @nascar 🐟@higginbotham_ins 🛻 @nfiempire 💧@drinkfreebird 👕@jockey 🍗@raisingcanes 🥩@meatchurch 👚 @inmysundays | @malloryervin 🍻@dixielanddelightbeer 🥃@titosvodka 🥃 @belvederevodka 🍺@drinknashvillecats 🍸@sevenhills_gin 🍷@adairfamilywines | @clospegase 🥃 @buffalotracedistillery 🥃@drinksouthbound 💄@nordstrom 🌸 @emcreativefloral | @catnail 🍔@walkons 🍔 @smalls_sliders 🍩 @beignetbox ⚡️ @bbinfluence ⛺️@wingandbarrel 🕯️@alexisnegranti 🐟 @danco_pliers 💪 @danieldefenseusa 🏹 @barnettcrossbows 🎪 @chattanoogatent 🎨 @tinynashville 🎀 @leighedwardsanscompany 📸 @taushadickinson 📸 @suhadabitphotography 🎥 @bigmex7 26 Oct 2026 To all who participated in the Red Bird Raffle - thank you for helping us raise $22k for CHD research and to support heart families across the country! Congrats to all of our lucky winners! 💛 guitar art by the talented @mobeoner heart dad to one of our favorite warriors Rainn. It takes a village and we love ours! 25 Oct 2026 Enter to win the Red Bird Raffle before this Thursday at thebrettboyerfoundation.org/shop or tap the link in our bio! 21 Oct 2026 The Cardiac High Acuity Remote Monitoring (CHARM) Program at Monroe Carell Jr. Children’s Hospital at Vanderbilt provides specialized, comprehensive care for children with complex congenital heart disease (CHD), both in the hospital and at home. Through home monitoring, frequent communication with families, close outpatient follow-up, and coordinated multidisciplinary care, the CHARM team provides vital support throughout the interstage period, one of the most medically fragile and emotionally challenging chapters in a child’s heart journey. At the heart of this program is a close partnership with families, ensuring they feel supported, informed, and connected every step of the way. “Graduating” from the CHARM Program represents an extraordinary milestone, marking a transition to a more stable source of blood flow and an exciting new chapter in a child’s journey. Every milestone is worth celebrating. These brave little hearts and their families have overcome so much, and recognizing just how far they’ve come makes these moments even more meaningful. We have so much love and appreciation for Monroe Carell Jr. Children’s Hospital at Vanderbilt and the incredible cardiac team who care for these children and their families every single day. Thank you for all that you do for our heart community! ❤️ 17 Oct 2026 We are so excited that the Red Bird Raffle is back!💛 Support The Brett Boyer Foundation’s mission with a $25 donation and be entered for a chance to win 1 of 6 prizes including a guitar signed by @lukebryan and tickets to a show next year. Winners will be drawn live from Luke’s farm on 10/24. 🌾 @brightforbrett was founded in memory of his niece Brett to provide more options for the 1 in 100 born with congenital heart disease.🐝 *No purchase necessary to enter or win 14 Oct 2026 The Red Bird Raffle is back and better than ever! Support our mission with a $25 donation before October 22nd, and you’ll be entered for a chance to win one six awesome prizes! The lucky winners will be drawn live by Luke, Caroline, Ellen, Bo and some surprise guests on Instagram at The Red Bird Games on October 24th. Enter to win at the link in our bio. *No purchase necessary to win #brightforbright Enter to win a Best Bad Influence merch pack! The Red Bird Raffle is back and better than ever! Support our mission with a $25 donation before October 22nd, and you’ll be entered for a chance to win one six awesome prizes! The lucky winners will be drawn live by Luke, Caroline, Ellen, Bo and some surprise guests on Instagram at The Red Bird Games on October 24th. Enter to win at the link in our bio. *No purchase necessary to win Enter to win an In My Sundays pajama set! The Red Bird Raffle is back and better than ever! Support our mission with a $25 donation before October 22nd, and you’ll be entered for a chance to win one six awesome prizes! The lucky winners will be drawn live by Luke, Caroline, Ellen, Bo and some surprise guests on Instagram at The Red Bird Games on October 24th. Enter to win at the link in our bio. *No purchase necessary to win Enter to win a pair of tickets to a NASCAR race of your choice! The Red Bird Raffle is back and better than ever! Support our mission with a $25 donation before October 22nd, and you’ll be entered for a chance to win one six awesome prizes! The lucky winners will be drawn live by Luke, Caroline, Ellen, Bo and some surprise guests on Instagram at The Red Bird Games on October 24th. Enter to win at the link in our bio. *No purchase necessary to win Enter to win a guitar personalized and autographed LIVE by Luke Bryan! The Red Bird Raffle is back and better than ever! Support our mission with a $25 donation before October 22nd, and you’ll be entered for a chance to win one six awesome prizes! The lucky winners will be drawn live by Luke, Caroline, Ellen, Bo and some surprise guests on Instagram at The Red Bird Games on October 24th. Enter to win at the link in our bio. *No purchase n 12 Oct 2026 We loved having a booth at Charm on the Farm, hosted by @vumc_pedscards It was wonderful to see families and care teams come together to celebrate these brave little hearts. The Cardiac High Acuity Remote Monitoring Program, or CHARM, provides specialized support for children with complex congenital heart defects in the hospital and at home. Through home monitoring, frequent phone calls, close clinic follow-up, and a multidisciplinary team, CHARM partners with families during the interstage period, one of the most fragile and often overwhelming parts of a child’s journey. Graduating from the CHARM Program is a huge milestone, marking a more stable source of blood flow, and absolutely worth celebrating! We love the entire cardiac team. Thank you for all that you do for our families!💛💛🐝 08 Oct 2026

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